After spending over 15 years trying to understand why I couldn’t lose weight on my legs with diet and exercise, a medical diagnosis revealed the cause

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I think I was about 14 when I started comparing my body to those of other women. At 5'7" and 127 lbs, my body looked like that of most skinny girls, but only from the waist up. My legs, however, looked like they belonged to someone else — someone twice my weight.

For years, I made an effort not to care, while trying a little bit of everything to lose weight. I visited countless doctors, who could only tell me to exercise more, and one of them even misdiagnosed me with varicose veins(!). At one point I was spending 2…


How Raziel Therapeutics’ RZL-012 could change treatment for rare fat disorders as we know it

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Portuguese version, click here

Last year, the Israeli pharmaceutical company Raziel Therapeutics received approval from the FDA to conduct clinical trials in the United States to investigate a drug that could possibly aid in treatment for lipomas, lipedema, and Dercum’s disease. If approved, the new drug, RZL-012, could be designated as an orphan drug for Dercum’s Disease, a drug intended for the treatment of a rare disease or condition.

According to the company, “once injected, RZL-012 triggers immediate fat cell death, followed by a transient inflammatory process that lasts about a month during which necrotic fat tissue is replaced by…


Tudo o que você precisa saber sobre a cirurgia: quanto custa, quais são os métodos, como é a recuperação, e mais

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Minhas pernas antes e depois da lipoaspiração de lipedema

Em janeiro, eu fiz a lipoaspiração nas pernas para tratar lipedema, um transtorno do tecido adiposo que causa um crescimento desproporcional das células de gordura nos membros inferiores e, às vezes, superiores.

No lipedema, as células de gordura são doentes, e não respondem à dieta ou exercício. Em geral, elas tendem a ficar maiores com o tempo, criando fibrose, o que causa dor, e podem dificultar a mobilidade da paciente. Por isso, o único jeito de remover a gordura é a lipo.

Leia mais sobre o lipedema aqui

Eu fiz minha cirurgia com o Dr. Michael Schwartz na Califórnia, nos…


Como a droga RZL-012 da farmacêutica Raziel Therapeutics pode mudar para sempre o tratamento de distúrbios raros de gordura

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English Version, click here

Ano passado, a farmacêutica israelense Raziel Therapeutics recebeu aprovação do FDA para conduzir ensaios clínicos nos Estados Unidos para investigar uma droga que poderia ajudar no tratamento de lipomas, lipedema, e doença de Dercum. Se aprovada, a nova droga, RZL-012, poderia ser designada uma droga órfã para doença de Dercum, ou seja, um medicamento indicado para o tratamento de uma doença rara.

Segundo a farmacêutica, “uma vez injetado, o RZL-012 desencadeia a morte imediata das células de gordura, seguido por um processo temporário inflamatório que dura cerca de um mês, durante o qual o tecido necrosado…


Dr. Herbst, the main lipedema researcher in the United States, talks about the latest findings in lipedema research and her lipedema treatment recommendations

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A few days ago, I had the honor to interview Dr. Karen Herbst over the phone. Speaking from Los Angeles, where she’s been spending part of her time lately, she responded to a few questions from the lipedema community.

Read the full Q&A below.

Q: What diet do you recommend for lipedema patients?
A: What I recommend is that you eat the least amount of toxins that you can. Low processed foods. You don’t want to eat carbs that are going to cause your insulin and glucose to rise, because that just builds fat. …


Por que continuamos a escutar “coma menos e faça mais exercícios” da mídia, nossos médicos, e até mesmo de amigos e família, quando comer demais nem sempre é o vilão?

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Dê uma boa olhada na foto acima.

Agora, deixa eu te fazer uma pergunta…
Por que você acha que a mulher da foto está com sobrepeso?

Imagino que você vai dizer algo como “ela come demais e é sedentária.” Ou, pelo menos, isso é o que a maior parte da população diria.

Mas e se essa não for a resposta? E se alguma outra coisa está causando o ganho de peso dela, e ela não faz nem ideia?

Foi isso o que aconteceu comigo.

Ano passado, descobri que eu tenho lipedema, uma doença do tecido conjuntivo na qual as células…


Why do we keep hearing “exercise more, eat less” from the media, our doctors, and even our friends and families, when overeating is not always the culprit?

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Take a good look at the picture above.

Now, let me ask you a question:
Why do you think this woman is overweight?

I believe you’ll probably say something like: “she eats too much and she doesn’t exercise enough.” Or, at least, that’s what the majority of the population would say.

But what if that’s not the answer? What if something else is causing her to gain weight, and she has no idea?

That’s what happened to me.

Last year, I found out I have lipedema, a connective tissue disorder in which fat cells grow disproportionally on legs and arms…


Everything you need to know about the surgery: what are the costs, insurance coverage, recovery, methods, and more

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My legs before and after leg liposuction surgery

Last January, I went through a leg liposuction procedure to treat lipedema, a fat disorder that causes an enlargement of the fat cells primarily on legs and arms. Because these are diseased fat cells, they don’t respond to diet or exercise, and only get bigger with time, creating fibrosis, causing pain, and even disability. The only way to remove this fat and ensure these cells don’t get any bigger is through liposuction.

You can read more about lipedema here.

In this article, I’ll detail my experience with the surgery, starting with the day before surgery. …


Step by step for submitting pre-authorization and reimbursement claim to your health insurance provider in the United States

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Other articles in this series
Should I have liposuction for lipedema?
How to choose the right plastic surgeon?
How to prepare for liposuction?

When I was diagnosed with lipedema, one of the first things my vascular doctor told me was that the only way to treat the disease effectively was liposuction, but he immediately cautioned me: “But insurance doesn’t cover it.” And he was right, most insurance companies and plans don’t cover the surgery because they still see it as either cosmetic or experimental.

However, a few insurance companies in the United States, mainly Anthem and Aetna, have been covering…


Tips I learned when getting ready for my surgery. What to buy and to do to have a good and speedy recovery

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Other articles in this series
Should I have liposuction for lipedema?
How to choose the right plastic surgeon?
How to get lipedema surgery covered by health insurance

In this series of articles, I’m writing about my own experience with liposuction for lipedema. Some, or most, of these tips should also apply for regular liposuction.

Once you’ve made the decision to have liposuction (click here for my tips on how to know if you’re making the right choice), and you’ve chosen the right surgeon (click here to read my tips on how to choose a surgeon), it’s time to prepare for…

Lipedema Journal

Spreading awareness about lipedema.

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